Oncofertility Patient Education

A variety of patient education materials have been created for providers to use in the oncofertility care setting- materials that describe fertility preservation options in easy-to-understand language and have been designed in multiple platforms ranging from informational fact sheets to internet videos. The Oncofertility Consortium has gathered the existing oncofertility patient aids and organized them within our Oncofertility Decision Tool Web Portal.

An entire section of the portal is devoted to patient education. We have done this so providers can quickly access materials when reproductive age patients whose fertility is threatened by their disease or treatment are on their clinic schedule.

Every patient has a unique learning style and therefore the following types of oncofertility educational materials are available for patients:

  • American Society for Reproductive Medicine (ASRM) one-page fact sheet with short summaries of the available fertility preservation options available to men and women diagnosed with cancer
  • Personal Accounts of Cancer and Infertility provided by Fertile Hope
  • An interactive web-based video designed for patients who may not have access to a full fertility preservation consultation with a reproductive endocrinologist
  • Interactive and informational websites, such as:
    • MyOncofertility.org
    • SaveMyFertility.org
    • The Livestrong Foundation
    • Fertile Action
  • The 24-hour fertility preservation hotline: FERTline
  • An electronic booklet on adolescent and young adult cancer issues created by the National Comprehensive Cancer Network (NCCN)
  • The Moving Forward video series created by the American Society of Clinical Oncologists (ASCO)

 

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If you would like the oncofertility patient education materials your clinic provides to patients included in the Oncofertility Decision Tool Web Portal, please email us at oncofertility@northwestern.edu or comment below.

 

Oncofertility Clinical Guidelines, Recommendations, & Opinions

Need to stay up to date on the latest clinical guidelines, recommendations, and opinions? Our Oncofertility Decision Tool Web Portal has an entire section devoted to bringing you ALL of the clinical guidelines affecting fertility preservation and oncology care.  We designed it this way so the resources you need are at your fingertips- organized in one easy to access online location. Check out our Clinical Recommendations, Guidelines, and Opinions section of the Oncofertility Web Portal today!

Screen Shot 2014-02-18 at 10.23.36 AMThe resources are listed in reverse chronological order and directly link to the clinical recommendations in PDF format making them easy to download to your desktop or print. We have also summarized each guideline explaining how health care providers may benefit from each resource.

 

 

 

 

Our Clinical Recommendations, Guidelines, and Opinions are pulled from the following organizations:

  • American Society for Reproductive Medicine (ASRM)
  • American Society of Clinical Oncology (ASCO)
  • British Fertility Society
  • Children’s Oncology Group
  • National Comprehensive Cancer Network (NCCN)
  • Society for Assisted Reproductive Technology (SART)

Check out our NEW Oncofertility Decision Tool Web Portal section on Clinical Guidelines, Recommendations, and Opinions. We want your feedback!

Oncofertility Decision-Making Publications

Yesterday we announced our NEW Oncofertility Decision Tool Web Portal. This online portal serves as a one-stop-shop for health care providers in need of tools to facilitate fertility preservation conversations with their patients whose disease, or its treatment, threatens fertility. In addition to decision tools and aids, we have collected and organized the existing literature discussing oncofertility communication strategies and provided online access to the publications in our web portal. Many of the publications come directly from Dr. Woodruff’s various Oncofertility books- the same books you may have read chapter summaries about in this very blog. The web portal has taken all of those book chapters, along with journal articles, and compiled them for health care providers. They are organized by publication year and patient population. Each Decision-Making Publication also includes a short summary describing how health care providers may find the reading beneficial in their clinical practice.

The Decision-Making Publications address many issues, including:

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  • Fertility preservation communication strategies for: pre-pubertal (pediatric), adolescent, and adult oncology patients
  • Hereditary cancer predisposition syndromes (e.g. HBOC due to mutations in BRCA1 and BRCA2) and fertility preservation
  • Family history of cancer and fertility preservation
  • Non-malignant conditions and treatments associated with infertility
  • Including partners in fertility preservation discussions
  • Including families in fertility preservation discussions (e.g. family decision making)
  • Psychosocial screening and loss of fertility
  • Bioethics and Oncofertility: Arguments and Insights from Religious Traditions

 

Please check out our brand new Decision Tool Web Portal and browse the communication literature YOU can use to help discuss fertility preservation options with your patients. We would greatly appreciate feedback in the comments section.

Have you written or read a piece of fertility preservation communication not currently accessible through the Decision Tool Web Portal? Email the Oncofertility Consortium at oncofertility@northwestern.edu if you would like it to be included!Open Book

Oncofertility Decision Tools

The Oncofertility Consortium has created a Decision Tool Web Portal for health care providers who care for patients diagnosed with malignant and non-malignant conditions which may impair fertility (or treatment may impair fertility).

Decision Tools are designed to enable oncofertility stakeholders to take action. They provide information to help health care providers guide patients through their fertility preservation options and help them make the best decision based on their treatment, lifestyle, values, and future fertility goals. We collected existing decision tools from oncofertility stakeholders around the globe and organized them in one easy-to-access web portal. Each decision tool links to the tool itself, the original research article or book chapter (if applicable), a description of the patient population the tool targets (e.g. adolescents), and a short summary of how health care providers can use the tool in clinical practice.

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Please check out our brand new Decision Tool Web Portal and find a tool that YOU can use to help discuss fertility preservation options with your patients. We would appreciate your feedback (leave a comment below).

Do you use fertility preservation decision tools or aids in your practice that are not currently accessible through the Decision Tool Web Portal? Email the Oncofertility Consortium at oncofertility@northwestern.edu if you would like your decision tool/aid to be included!

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Watch Now!

In case you missed Dr. Woodruff’s interview last week on Chicago Tonight, you can watch it here: Ending the Gender Bias in Research.

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Thank you to Drs. Woodruff and Kibbe on their tireless work to promote the inclusion of females in all research, from cells to humans and we congratulate them on a wonderful interview.

 

 

 

 

Dr. Woodruff to be featured on WTTW tonight!

Screen Shot 2014-05-29 at 3.54.03 PMDr. Teresa Woodruff, Director of the Oncofertility Consortium and Northwestern’s Women’s Health Research Institute will be featured on Chicago Tonight on WTTW, Channel 11, tonight at 7pm CST.  Dr. Woodruff, along with Dr. Melina Kibbe from Northwestern Medicine, were driving forces behind the push for the NIH to require females in all preclinical research studies; from cells to animals.  Tune in if you can!

Register Now for the 2014 Oncofertility Conference!

Screen Shot 2014-05-12 at 10.04.12 AMRegistration is now open for the 2014 Oncofertility Conference, Bench to Bedside: Oncofertility Advances in Males and Females which takes place September 22-23, 2014 in Chicago, IL.

This year’s conference will attract more than 150 researchers, clinicians, advocates and trainees from around the globe who are dedicated to ensuring reproductive health for cancer survivors whose disease or treatment may impair fertility.

This year, we are excited to expand the number and scope of training courses offered in conjunction with the 2014 Oncofertility Conference, Bench to Bedside: Oncofertility Advances in Males and Females.  In addition to our exciting Day 1 agenda full of presentations and case studies by Oncofertility leaders, we have elected to have 2 clinical-based training courses and 2 lab-based training courses on Day 2 with a shared luncheon to allow for additional networking and communication between researchers and clinicians.

Review our agenda and REGISTER for the 2014 Oncofertility Conference now!

Join Us: Cancer Survivors’ Celebration

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The Robert H. Lurie Comprehensive Cancer Center of Northwestern University is proud to host a Cancer Survivors’ Celebration Walk & 5K on Sunday, June 1st in Chicago’s Grant Park.  No pledges are required to participate and registration is open until May 30th.

This wonderful event includes a non-competitive walk along the lakefront or a chip-timed 5K race, picnic, family entertainment, Dedication wall, and more. Join  survivors, families, friends, physicians, scientists, and health professionals to celebrate our survivors!  The celebration begins at 7:30am and we hope to see you there.

Register online now! 

 

Korean Society for Fertility Preservation

GlobeThe Korean Society for Fertility Preservation

The Oncofertility Consortium is pleased to announce another Global Partner in Korea: The Korean Society for Fertility Preservation (KSFP).  Please see below information provided by KSFP in both English and Korean and review the Oncofertility Global Partners webpage to learn more.

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The Korean Society for Fertility Preservation (KSFP) was created in 2013 to help collaboration between the medical doctors and researchers who specialize in reproductive medicine and oncology. The ultimate purpose of this society is to help patients undergoing treatments affecting their fertilityand reproductive function. The goals of KSFP are academic education, networking, advertisement, discussion and development of standard protocol forfertility preservation.

KSFP holds an annual conference and lecture. Furthermore, the society has established a national fertility preservation network with a regional center hospital in each state to implement the use of fertility preservation. This network hopes to improve the quality of treatment and to achieve the same level of productivity in each state. KSFP is pursuing a clinical guideline for fertility preservation in the future. The president is Prof. Seok Hyun Kim in Seoul National University College of Medicine.


대한가임력보존학회

대한가임력보존학회 (The Korean Society for Fertility Preservation) 은 가임력보존 치료에 대한 의료인 및 연구자들간의 학술적인 교류 및 교육, 가임력보존에 대한 홍보 강화, 가임력보존의 표준 치료방침 논의 및 개발 등의 목적을 위해 보다 많은 관련 분야의 의료인과 연구자들의 협력을 위해 2013년 창립되었습니다.

주된 활동은 각각 연 1회의 연수강좌와 학술대회의 개최 외에도, 전국적인 가임력보존 치료의 활성화와 전국 동일 수준의 가임력보존 치료의 달성을 위해 전국 가임력보존 네트워크 (National Fertility Preservation Network)를 확립하여 각 지역의 거점병원을 선정하고, 거점병원에 대한 기술이전을 통해 각 지역에서의 가임력보존 치료의 수준을 향상시키고, 나아가 지역거점병원을 중심으로 지역내의 가임력보존 치료의 활성화와 치료수준의 향상을 도모하고자 노력하고 있습니다. 또한 가임력보존 치료의 표준 치료지침 (Clinical Guideline)의 작성을 추진과제로 하고 있습니다. 회장님은 서울의대 산부인과학 교실 김 석현 교수님이십니다.

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We again welcome The Korean Society for Fertility Preservation and are thrilled at the growing reach of the Oncofertility movement.  Read our blog and review our Global Partners page to learn more!

Stupid Cancer Chicago Meet-up: June 25th

UPDATE: NEW VENUE INFORMATION BELOW!

The Oncofertility Consortium is pleased to spread the word about an upcoming Stupid Cancer Meet-up with founder and CEO (and a wonderful friend of the Oncofertility Consortium), Matthew Zachary.  Mark your calendars for Wednesday, June 25th - read more below!

Wednesday June 25th @7:00pm

Rockit Bar & Grill

22 W Hubbard St

Chicago, Illinois 60654

Got cancer? Under 40? Sucks, huh? Well, its time to get busy living with an official Stupid Cancer Meetup, made possible by your friends over at Stupid Cancer, a non-profit organization that empowers young adults affected by cancer through innovative and award-winning programs and services.

Come out for a very special meetup with Stupid Cancer founder and CEO, Matthew Zachary.  Learn about his experiences as a young adult survivor and how it drove him to create the most prominent nonprofit focusing on young adults affected by cancer.  Additionally, learn about Stupid Cancer’s programs and initiatives, including the OMG! Cancer Summits, Cancer Con, Instapeer, boot camps, town halls, and more.  Hear from past attendees and ask all your burning questions.

It’s time to get busy living – and we’ll see you there!  To learn more about Stupid Cancer, visit stupidcancer.org.

RSVP FOR THE JUNE 25TH EVENT HERE

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